A rare disease took her sister. Now, a Burleson mom is helping search for a cure

Alström syndrome affects roughly one in 500,000 people. In May, Fort Worth will host a symposium of researchers looking into treatments.
Yahoo

Baby Born with Rare Syndrome That Doesn’t Allow Her To Close Her Eyes

A newborn in Minnesota has been a fighter since before she entered the world. Little Hazel has hydrocephalus, a condition that doesn’t allow her brain to drain fluid properly. When the baby was born, ...
IFLScience

600-Year-Old Knight Diagnosed With Rare Crouzon Syndrome In First-Of-A-Kind Discovery

In 1174, Alfonso VIII of Castile ceded the castle of Zorita de los Canes in Guadalajara to the order so it could protect the ...
Daily Herald

Families of children with rare, relentless Dravet syndrome live with constant uncertainty

Most parents worry about scraped knees, tumbles on the playground or gym class injuries. But for the Raia and Tisdale families, their everyday fears are life-threatening: a seizure that can strike ...

Neuren Pharmaceuticals kicks off phase 3 trial in rare syndrome

Neuren Pharmaceuticals shares are on watch after dosing began in its key Phase 3 trial for Phelan-McDermid syndrome. The post ...