The mother of a four-year-old boy with a rare muscle disease says screening newborn babies for the condition could "save ...

Singer Jesy Nelson has pledged to "shout from the rooftops" to campaign for all babies to get tested for a rare muscle ...

The BBC's Ben Morris describes living with spinal musclar atrophy, after Little Mix's Jessy Nelson spoke about it.

Dad tells of anguish after daughter left in a wheelchair because the NHS in England and Wales doesn’t test for spinal ...

British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.

At Accidents and Emergencies (A & E), the equivalent of a hospital emergency room in the U.S., things began spiraling. The ...

A County Armagh mother, whose five-year-old daughter has Spinal Muscular Atrophy (SMA), has said singer Jesy Nelson should ...

Jesy Nelson revealed in an Instagram video on Sunday, Jan. 4, that her twin daughters have been diagnosed with Spinal ...

Spinal muscular atrophy (SMA) is a severe neurological disease for which there is presently no cure, although current therapies can alleviate symptoms. In the search for better treatment options, ...

The U.S. Food and Drug Administration has approved Itvisma (onasemnogene abeparvovec-brve) for the treatment of spinal muscular atrophy (SMA) in patients 2 years and older with confirmed mutation in ...

Jesy Nelson shared a new video of one of her twin daughters on her Instagram Stories on Saturday, Jan. 10. The post comes ...